But
the Canadian brace is not "too new" for
two of the most prestigious children's orthopaedic
hospitals in the U.S. The SpineCor is used
at the renowned Shriners Hospital for Children
in Erie, Penn., and at the famous Johns Hopkins
Hospital in Baltimore, Md. Dr. Paul Sponseller
at Johns Hopkins believes that the SpineCor
brace "works for smaller curves, in patients
who are very diligent about wear." Although
Sponseller also said that some patients do
not respond to any kind of bracing, he added, "I
have had some noticeable successes as well,
preventing surgery in patients who may well
have needed it." Dr. James Sanders is
the former chief of staff at Shriners and is
now professor and chief of pediatric orthopaedics
at Strong Memorial Hospital in Rochester, N.Y. "While
I do like the theories of the SpineCor," he
said, "it needs good testing to know if
it is any more than just a nice-sounding theory." Both
Sanders and Alman refer to studies now under
way to determine if any of the braces currently
in use really work.
Some experts believe the best chance of avoiding surgery is in diagnosing
curves early. In the U.S., school screenings are done in many states.
Girls are generally screened in the fifth and eighth grade, and boys
in the eighth or ninth grade. The method used is the Adams forward-bending
test: the child bends over to a 90-degree angle while the examiner, standing
behind, compares both sides of the back, looking for asymmetry, like
a protruding shoulder blade. When the child stands up straight, the screener
can also check for unequal shoulders, or an uneven waist. If a problem
is noted, the child is referred to a doctor. Canada has no such screenings
in public schools.
Many doctors think school screening is a waste of time, since they don't
believe there is an effective conservative treatment for scoliosis. Rivard
disagrees. "I believe finding curves earlier, while they're smaller
and treatable, will keep some children out of surgery." According
to Rivard, fewer fusions are done in Europe due to their rehabilitative
approach to scoliosis. "In Europe, the first line of defence for
scoliosis is rehabilitative therapy. In Canada, the first referral is
to a surgeon," he says.
At Sick Kids Hospital, Dr. Alman told me that scoliosis patients with
curves too small for traditional treatment (under 25 to 30 degrees) are
now routinely referred to the hospital's on-staff physiotherapist — but
not for any active treatment. "Mainly to wait and watch and keep
an eye on things," he said. Joe O'Brien, president of the National
Scoliosis Foundation, is appalled at that. "I've never understood
the logic of 'wait and watch,' " he told me indignantly. Also a
supporter of school screening, O'Brien, who had his first scoliosis surgery
at the age of 16, and four subsequent surgeries, said, "The only
operation I regret was the first — it created all the problems
that made the following surgeries necessary." O'Brien has three
children with scoliosis and has managed to keep them all out of surgery:
one using the SpineCor. Asked about the Quebec brace, he said, "It
did what it was supposed to do [hold the curve and prevent surgery]."
SpineCor also did what it was
supposed to do for Valerie Goulet, a second-year
journalism student at Université de Montréal
who was fitted with the brace at the age of 15 due
to a painful 25-degree curve. She wore it the recommended
21 hours a day for 18 months, and said, "I didn't
mind at all. I even had a boyfriend." Before
being fitted with the SpineCor, Goulet had been told
she might eventually need surgery. "And that
I must wear a hard brace," she said. "I
cried and cried." Long out of the brace, her
curve is stable at only 12 degrees (anything under
10 degrees is so mild it's not even considered scoliosis). "I
am so thankful that I met Dr. Rivard," she said.
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